Babydakota.org

 

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 Baby Dakota was born on the 13th April 2006 with Septo Optic Dysplasia

                                                                                                                                                                                                                                                                                                           

 

 

 

 

 

 

About Me

I was born in April 2006 with a rare brain condition called Septo-Optic Dysplasia. In the first year of my life i spent 8 months in hospital with various illnesses and problems all relating to to my condition. Septo-Optic Dysplasia causes various problems for me, including pituitary deficiences, hormone deficiences, low muscle tone, seizures, and also I am blind. I have to have hormone replacement everyday to help me grow, and i am on medication everyday, including steroids and growth hormone injections. I also have various other health issues, all related to my condition, and need to attend hospital for regular blood tests, just to make sure that the levels of my medication are correct otherwise i would be very ill again. I have open access to the childrens ward in my local hospital, which is good because i spend a lot of time there due to being prone to infections and illness.

What i hope to do.

I am hoping to raise money so that i can go to China and have stem cell treatment on my optic nerve. This would allow me to see the world for the first time, and cope better when im older. Although this is not a cheap treatment, i hope that i can have it, as my sight would make things a lot easier when i grow up. Unfortunately I cant have this treatment in the UK as no where does it.

 

How to Help

 

You can also donate from any Ulster Bank, simply ask to transfer your donation to the following account details:

Account Name: Dakota Clarke

Sort Code: 98-02-80

Account Number: 10023681

 

Money raised from 12/2/08 £21,097

Thanks to all who donate. I try to reply to all donations but sometimes miss a few.


 Tickets for the night in Nortel Club now available HERE

Larne street collection HERE

For Celtic Tour Auction Click HERE

Kylie Concert Pics HERE

Kingspark Spar Fun Day HERE

For Random Pictures Click HERE

 

Dakota Makes The News

Sunday Life - Scans or WebLink

and here

Community Telegraph - Scans or WebLink

News Letter - Scans - 29/04/2008

Newtownabbey times - Link

Daddy was on the Nolan Show on 4th April on Radio Ulster

ChinaStemCell News - Here

Dakota's Blog is updated all the time, see here

 

   

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