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Dakota's Blog

9th Feb 08: Just back out of hospital from a 2 week stay. The doctors want to put a camera into my belly to see what is wrong. They say i will have to come back next week so they can put me to sleep and have a look. 

15th Feb 08: Hospital telephoned to say i have to go back in on Monday, the doctors are going to do the procedure on Tuesday

18th Feb 08: Back into hospital this morning. Doctors say that i have to get blood taken, and not eat after 3pm so i can be ready for surgery tomorrow morning. Hopefully this will give them an idea with what is wrong with my tummy

19th Feb 08: Went for the procedure today, daddy held me while they put me asleep. Afterwards the doctors told my mummy and daddy that they couldnt see anything wrong so they have to start considering what else could be causing the trouble. Its just something else we have to figure out.

20th Feb 08: Home again today, but not before the doctors repeated blood tests.

22nd Feb 08: Back to the hospital today for more blood tests. they were just to monitor my blood sodium levels. All a part of my condition.

23rd Feb 08: Had my first real spoonfeed today after doctors gave us the word we could try. Will take some getting used to, but i still get a bottle of my special milk too

29th Feb 08: Couldnt sleep at all overnight. My sleepy medicine didnt help and i was up from 4am. I can stay awake for 3 days straight, which is a known part of my condition. I hope i sleep better tonight.

6th Mar 08: Back into hospital today. Was very sick this morning, vomiting a lot and couldnt take any water or milk. So i got dehydrated quickly. With my type of diabetes that can be dangerous so the doctors decided to keep me in, and put an IV line in for fluids.

7th Mar 08: After spending the night in hospital im back home again. Doctors were happy that i was not vomiting anymore and back to normal form.

23 Mar 08: Sunday Life put me on the front page with a story of what i want to do. See below right in "Dakota Makes The News".

28 Mar 08: We are so grateful for all the support we have gotten so far. Really we cant thank you enough for this.

31 Mar 08: The Sunday Life ran another piece, thanking everyone for the support so far. You have all been great

8th April 08: Someone stole a collection tub in Ballymena which had £100 - £150 in it. Exactly how low do you need to be to steal a charity collection bucket.

26th April 08: The Antrim Walk went well, at least the rain stayed off for us. Thanks to all who went. (PICS HERE)

2nd May 08:  Ashers held a donut day today, with all proceeds going to help my appeal. Thanks to all involved and also to all who bought donuts.

5th May 08: Me, Mummy, Aunt Roberta and our neighbour Joy done the Belfast marathon walk with my cousin Ellie and Shannon. It was a great day and the sun was shining.  (PICS HERE)

7th May 08: Lindsay Cars in Mallusk held a coffee morning today. I stopped by and had my picture taken with the girls. (PICS HERE)

9th May 08: Went to the bank today to lodge money and found we are just over the £10,000 mark. Fantastic folks, thanks to all who have helped so far. We are now a third of the way there.

12th May 08: Was in the Sunday Life again yesterday, just an update on how things were going. Was in the Newtownabbey Times on Thursday too, Was also in the Ballyclare Gazette on 14th May. Keeping people updated is the most important thing. 

18th May 08: Went with Mummy to the beauty day in Whiteabbey Community Center, had a great day. Thanks to Lindsey, Louise and Katrina.  (PICS HERE)

24th May 08: Was at the Ballyclare May fair today, the BBQ Woodsides held was great. Thanks to all involved. (PICS HERE)

26th May 08: Woodsides Handed a cheque over for £1500 today, they fundraised all week. Thanks a lot folks. (PICS HERE)

6th June 08: It was Kingspark Primary School sports day today, Thats Jillian being kept busy selling the raffle tickets for the Kylie Concert. In the background you can see the queue for tea and coffee, which the school donated all proceeds to my appeal. Thanks to everyone involved. (PICS HERE)

18th June 08: Thanks to Raymond and his lovely wife, who done a street collection today in Larne raising £221. Raymond played music and held a draw for a trip to Scotland. (PICS HERE)

23rd June 08: Massive thanks to Jillian Phillips, who raised £484 with the Kylie concert ticket draw. The tickets were won by Jodie Orr, a pupil of Kingspark Primary. Kingspark also raised £260.93 with a Tuck shop sale and tea and coffee sale with the help of the Spar. Thanks all.(PICS HERE)

26th June 08: Mummy, Nanny, Auntie Roberta and mummy's friends Lisa and Lisa were at the Kylie concert tonight collecting. They collected £372. Thanks to all who donated. (PICS HERE)

27 June 08: Kingspark Spar held a fun day today. Despite the wet weather everyone had great fun. There was a bouncy castle, face painting, food and drink and balloon bending. And no small amount of wigs and photos. Thanks to Spar and Hendersons, the face painters, balloon benders and also Tayto crisps and Mr Tayto himself. Was a great afternoon. (PICS HERE)

30th June 08: Went to the bank today and we are now just over £21,000. Fantastic. Two thirds there.

2nd July 08: Tickets for the night in the Nortel club on August 22nd are now available.

7th July 08: Manchester United sent me a signed first team ball to auction off. A really huge thanks to Sir Alex and all at Manchester United for it. To see the ball click the picture.

16th July 08: The Europa Hotel donated a night in a Double Executive room, with breakfast, This is a really fantastic prize, and we are raffling it off for £2 a ticket. You can enter online by clicking HERE. Thanks to James McGinn, Lynsey Carroll and all at the Europa Hotel, Belfast.

24th July 08: The ASDA bag pack on Saturday and the Beauty Day on Sunday went fantastic. A big thanks to all that helped out and donated.

10th August 08: Was in the Sunday Life today with a double page about the Man Utd signed ball (click above to see).  

14th August 08: Had the cold the last few days so i had to get my steroids doubled.

22nd August 08: 1st Newtownabbey Linfield supporters club held their annual "Billy Neill" charity football match last night. They generously spilt the proceeds between me and the childrens hospice. They presented mummy and me with a cheque for £500. Thanks guys, its really appreciated. (PICS HERE).

The night in the Nortel Club was fantastic, everyone had a great time. Thanks to all who came and also to all the businesses that donated raffle prizes. Thanks also to The Traynor family, who donated a massive "Me to You" bear for the auction. (PICS HERE)

24th August 08: Daddy has been busy updating the site this morning. There are new pictures and a video added to the photo album, a facelift for the Man Utd ball page, and a few other bits and bobs.

About Me

I was born in April 2006 with a rare brain condition called Septo-Optic Dysplasia. In the first year of my life i spent 8 months in hospital with various illnesses and problems all relating to to my condition. Septo-Optic Dysplasia causes various problems for me, including pituitary deficiences, hormone deficiences, low muscle tone, seizures, and also I am blind. I have to have hormone replacement everyday to help me grow, and i am on medication everyday, including steroids and growth hormone injections. I also have various other health issues, all related to my condition, and need to attend hospital for regular blood tests, just to make sure that the levels of my medication are correct otherwise i would be very ill again. I have open access to the childrens ward in my local hospital, which is good because i spend a lot of time there due to being prone to infections and illness.

What i hope to do.

I am hoping to raise money so that i can go to China and have stem cell treatment on my optic nerve. This would allow me to see the world for the first time, and cope better when im older. Although this is not a cheap treatment, i hope that i can have it, as my sight would make things a lot easier when i grow up. Unfortunately I cant have this treatment in the UK as no where does it.

 

How to Help

 

You can also donate from any Ulster Bank, simply ask to transfer your donation to the following account details:

Account Name: Dakota Clarke

Sort Code: 98-02-80

Account Number: 10023681

 

Money raised from 12/2/08 £22,765

Thanks to all who donate. I try to reply to all donations but sometimes miss a few.

*Please make any cheques payable to Dakota Clarke


Manchester United Signed First Team Ball HERE 

 1st Newtownabbey Linfield Supporters Club  HERE

 Draw for night in the Europa HERE 

Kingspark Spar Fun Day HERE

Please remember to check the online competitions for the chance to win some great prizes

CLICK ME

Dakota Makes The News

Sunday Life - Scans or WebLink

and here

Community Telegraph - Scans or WebLink

News Letter - Scans - 29/04/2008

Newtownabbey times - Link

Daddy was on the Nolan Show on 4th April on Radio Ulster

ChinaStemCell News - Here

Dakota's Blog is updated all the time, see here

New pics added to the photo album

   

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