About Me

I was born in April 2006 with a rare brain condition called Septo-Optic Dysplasia. In the first year of my life i spent 8 months in hospital with various illnesses and problems all relating to to my condition. Septo-Optic Dysplasia causes various problems for me, including pituitary deficiences, hormone deficiences, low muscle tone, seizures, and also I am blind. I have to have hormone replacement everyday to help me grow, and i am on medication everyday, including steroids and growth hormone injections. I also have various other health issues, all related to my condition, and need to attend hospital for regular blood tests, just to make sure that the levels of my medication are correct otherwise i would be very ill again. I have open access to the childrens ward in my local hospital, which is good because i spend a lot of time there due to being prone to infections and illness.

What i hope to do.

After coming home from China in March my sight has went from light perception only to seeing at a distance of six feet. I am hoping to go back one last time, as the doctors feel i would benefit even more from another round of treatment.