About Me

I was born in April 2006 with a rare brain condition called Septo-Optic Dysplasia. In the first year of my life i spent 8 months in hospital with various illnesses and problems all relating to to my condition. Septo-Optic Dysplasia causes various problems for me, including pituitary deficiences, hormone deficiences, low muscle tone, seizures, and also I am blind. I have to have hormone replacement everyday to help me grow, and i am on medication everyday, including steroids and growth hormone injections. I also have various other health issues, all related to my condition, and need to attend hospital for regular blood tests, just to make sure that the levels of my medication are correct otherwise i would be very ill again. I have open access to the childrens ward in my local hospital, which is good because i spend a lot of time there due to being prone to infections and illness.

What i hope to do.

I am hoping to raise money so that i can go to China and have stem cell treatment on my optic nerve. This would allow me to see the world for the first time, and cope better when im older. Although this is not a cheap treatment, i hope that i can have it, as my sight would make things a lot easier when i grow up. Unfortunately I cant have this treatment in the UK as no where does it.